A painful condition affects many women worldwide, causing tissue growth on parts of the body. This condition can be difficult to diagnose, with some people waiting years for an answer. A woman's experience with this disease involved years of suffering before finally getting a diagnosis.

New methods for diagnosis are being explored, offering hope for those affected. These methods are currently being used in other parts of the world.

Further information about this condition and new diagnostic approaches is available, including the story of one woman's journey to diagnosis and the challenges many people face in getting a timely diagnosis.